Patient-reported and proxy-reported outcome measuresfor the assessment of health-related quality of life amongpatients receiving enteral feeding: a systematicreview protocol

This systematic review focuses on evaluating patient-reported outcome measures (PROMs) and proxy-reported outcome measures for assessing health-related quality of life (HRQoL) in individuals receiving enteral feeding. Enteral nutrition, such as via a nasogastric or PEG tube, is essential for patients unable to meet nutritional needs orally, for instance due to swallowing disorders. While this feeding strategy can improve nutritional status, it also impacts psychological and social aspects of quality of life.

The aim of the review is to analyse existing measurement tools in terms of their psychometric properties (validity, reliability, responsiveness) and clinical utility (interpretability, feasibility). Both generic and disease-specific PROMs are considered, provided they are multidimensional. Proxy-reported instruments are also included, as some patients are unable to report on their own situation. The review will support recommendations for selecting the most appropriate instruments for clinical practice and research in this patient group.

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